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AN
OPEN LETTER FROM SUE LAWLER
Founding Patron
My 6-year old granddaughter Amanda is a beautiful, happy child with
a smile that lights up the sky. Since birth, she has endured more than
most of us do in a lifetime. Amanda has Tuberous Sclerosis, a disease
that causes tumors and tubers to form on every organ. In her case they
were found in the brain and heart. Amanda had to have surgery to remove
a tuber from her brain at the age of two, and she went through night
after night of seizures until her doctors were able to find the right
medication to alleviate them. The disease has impacted Amandas
development. At age two, she began therapy for hand and eye coordination
and speech development, and at three she started school at a preschool
for children with special needs. Although she now attends a regular
kindergarten class, she receives additional speech and motor therapy.
My son and his wife lived in California when Amanda was born. Shortly
thereafter, my sons job brought him back home to New York and
he and my daughter-in-law were once again faced with the task of seeking
out the best doctors to treat Amanda. High on the list of recommendations
they received for our area was Dr. Michael Gewitz, the Chief of Pediatric
Cardiology at Westchester Medical Center, who quickly won Amandas
confidence and who Amanda still sees. When Amandas heart rate
dropped, Dr. Lester Permut, a pediatric cardiac surgeon at Westchester
Medical Center, placed a pacemaker in Amandas chest. On every
occasion when I accompanied Amanda to Westchester Medical Center, I
was deeply impressed by the abundance of compassion and warmth despite
the busy and crowded facilities.
These are the events that led me to involvement with the development
of the art collection and program at the Maria Fareri Childrens
Hospital at Westchester Medical Center. As someone who has been involved
in the arts for a lifetime, from being an artist to directing Condeso/Lawler
Gallery in New York for over fifteen years, I am greatly aware of the
role that art plays in inspiring and comforting those who include it
in their lives. Art can free one from the confines of their reality
and give one the opportunity to express oneself in many different ways.
One evening Amanda and I made Valentines; we were both so absorbed in
creating them that Amandas bedtime slipped away long before we
noticed. One after another, Amanda created Valentines that reflected
her imagination and observations, each one unique, each one done with
purpose. Amanda, like most children, loves to draw and paint, loves
putting on a show, and loves expressing herself in any way she can.
Anything that allows her imagination to fly takes her away from the
day-to-day reality of doctors, medications, and the limitations of her
physical self.
Art is more than simply a luxury. For many, it is a necessity. Art has
been proven to play a very important role in healing. The art program
that we are developing will enable the children at the hospital to open
the doors of their imagination and creative needs. It will provide a
comforting and less institutional environment in which to spend necessary
healing time. The art that surrounds the children and their families
will help them focus less on their fears and more on their wishes and
dreams and will make their time at the hospital pass quickly and more
enjoyably.
Our vision is ambitious, and philanthropy is our sole means to make
it happen. I encourage you to read on and share our interest in helping
to make this plan a reality by contributing as generously as possible.
Be assured that the benefits you will receive will greatly outweigh
the amount you give and that your generosity will brighten the faces
of many children for years to come.
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